raredisease2017
Interregional Rare Diseases Network Piedmont and Valle d'Aosta

The Rare Lives exhibition arrives in Turin

For the first time in Piedmont at the San Giovanni Bosco On the occasion of the Rare Diseases Week

22 February 2017 / Events

Rare diseases and equally rare and extraordinary will to live: from 27 February to 5 March , for the whole week dedicated to rare diseases , for the first time in Piedmont the Giovanni Bosco Hospital will host in its atrium the photo exhibition " Rare Lives " , exceptional creation by the photojournalist Aldo Soligno and UNIAMO - Italian Federation of Rare Patients Onlus .

Special lives in an extraordinary photographic reportage, made in Italy and in Europe in 3 years of work, visiting 70 families, to make known the daily life of many people who live with a rare pathology, through the masterly shots of the photojournalist of the agency Echo Photojournalism .

Behind every rare disease there is a person and a family and there is their struggle against the disease and its dramatic repercussions, the obstacle course towards a sometimes unattainable diagnosis, the impact on life and society.
The exhibition is an international awareness campaign to raise awareness and information on rare diseases.

A similar exhibition will take place simultaneously at the S. Luigi Gonzaga Hospital in Orbassano.